After my annual mammogram in Feb 2013, I was told to come back in 6 months so they could “follow up on a few things”. The follow-up appointment in September turned into a dizzying afternoon of musical chairs from the mammography room, to the waiting room, to the ultrasound room, back to the mammography room, and finally into a private office where I met the social worker to asked me to come back for 2 biopsies. Two biopsies spread over 4 days and 2 days of waiting later, I got the call on October 8, 2013 that I had tested positive for infiltrating ductal carcinoma.Apparently, nearly 80% of breast cancer is IDC, so I seem to have the “it” breast cancer. My tumor is “teeny tiny” at 6 mm.
- My left breast has infiltrating (or invasive) ductal carcinoma
- It appears to be 6 mm but we don’t know the exact size or shape but it appears to be teeny tiny
- Clinical Stage 1. (This gets reviewed again after tumor is removed)
- Grade 2: (on a scale 1-3). Intermediate cell growth rate.
- Ki-67 is 40-50%. This measures how aggressive the tumor is. This is more aggressive than they expected.
- HER-2 This measures human epidermal growth factor receptor and HER-2 means that the HER2 protein is not causing the cancer.
- Hormone Status is ERPR+ which means that the estrogen is causing the tumor to grow, which indicates that the cancer should respond well to hormone suppression treatments. It appears I will be a good candidate for the drug Tamoxifen that I would take for 5 years.
- The MRI shows no other tumors and lymph nodes appear to be clear from the MRI report.
- After they remove the tumor, they will text sentinel nodes to check if they have been affected.
- Treating cancer is a 2-fold process: treating local occurrence and preventing systemic occurrence.
Post Surgery Update:
- On November 14, 2013 I underwent a bilateral mastectomy with expanders.
- The tumor measured 1.1 cm.
- They took 3 lymph nodes and all were negative.
- The margins were “clear”.
- They did find some areas of DCIS (stage 0 non infiltrating cancer) – which they got most of, but will plan to take more out when I have my final exchange expander to implant surgery.
- Second surgery in December 2013 to repair left breast. New expander placed.
- Hospitalized 3 days December 2013 to treat infection.
- Oncotype score 19. “Intermediate” (inconclusive results.)
- Mammaprint result Luminal A; Low risk.
- Started Tamoxifen January 2014.
- Expanders placed November 2013.
- Left expander repair surgery, left expander replaced December 2013.
- Left expander repair surgery #2 April 2014.
- Exchange surgery June 2014.
- Reconstruction on exchange surgery August 2014.
- Nipple surgery and light recon October 2014.